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Canadian Hemochromatosis Society
 
 
 

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Hemochromatosis —

1 Canadian in 9 is a carrier

 

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Volunteer for Awareness Month

If you have an idea for raising awareness about hemochromatosis, or you would like to help out during Awareness Month, please contact us.

Additional volunteer opportunities can be found on this site's Volunteer page.

DNA Testing for Hereditary Hemochromatosis

Hereditary hemochromatosis is caused by defects in a gene called HFE. DNA testing can confirm the presence of the three mutations which are known to cause hemochromatosis: C282Y, H63D and S65C. DNA testing can be done to find out if your family may be at risk.

A confidential HFE genetic testing using buccal (mouth) swab collection is available through Genetrack Biolabs at www.hemochromatosisdna.com.

Genetrack Biolabs

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Awareness Month

Held Across Canada Each May

Hemochromatosis Awareness Month is held the month of May of each year.

During Awareness Month, the Society print packages and electronic information for distribution to a country-wide network of regional contacts / volunteers.

Awareness Month volunteers concentrate their efforts during this month by setting up information booths in malls, hospitals, pharmacies and blood donor clinics.

We also schedule interviews with local radio, television and newspapers to drive people to the CHS web site or to contact the CHS office, where they can access hemochromatosis information packages.

2013 Events

Below is a list of events surrounding Hemochromatosis Awareness Month. Please contact us if you have an idea for raising awareness about hemochromatosis, or you would like to volunteer during Awareness Month.

Canada-Wide

Volunteers will send out Letters to the Editor in their local papers to promote hemochromatosis awareness. If you would like a template of a letter to send to your local newspaper, please email Brenda at bohara@toomuchiron.ca.

Irons for Iron

YOU ARE INVITED!
The Canadian Hemochromatosis Society is proudly hosting its first annual IRONS for IRON golf events in three cities across the country during the month of May, hemochromatosis awareness month:

Vancouver Event – Quilchena Golf & Country Club, Richmond, BC
Thursday, May 16, 2013 - 2:00 pm golf with dinner to follow

Cape Breton Event –The Lakes Golf Club, Ben Eoin, Cape Breton
Monday, May 20, 2013 – 12:30 pm lunch with golf to follow

Calgary Event – Speargrass Golf Course, Carseland (southeast of Calgary)
May 30, 2013 – 1:30 pm golf with dinner to follow

IRONS for IRON is a fun day of golf with friends to help support the CHS and build awareness of hereditary hemochromatosis, Canada’s most common genetic disorder. Players of all skill levels are invited to participate. Your registration fee of $200 will cover greens fees, a meal, and door prizes. For those of you who don’t want to golf but wish to support CHS, a $100 registration fee option for the meal only is also available. A donation receipt will be provided for the portion of the registration fee that is in excess of the golf fees and event charges. Early registration is encouraged as spots are limited.

Register here or sponsor the event!

 

The following is a list of information sessions and other events happening in your community.

Information sessions connect hemochromatosis sufferers and their families to others affected by the disorder in the local community. Representatives of the Canadian Hemochromatosis Society will provide information on the treatment and management of the disorder and updates on the activities of the Society locally, provincially, and nationally. Medical professionals, students and other guests are welcome. Information sessions are part of CHS’ Community Outreach Program and are provided free of charge. Call 1 877 BAD IRON (1 877 223 4766) to attend.

April 26, 27 & 28
Canadian Home Builders' 2013 Home Show Information Booth
Prince George Kin Centre
Prince George, BC

Sunday, April 28
Radio Interview: Dr. Joe Schwarcz Show – The Right Chemistry
CJAD 800 Montreal
Approximate air time: 3:30 pm EDT
Listen live at www.cjad.com

Monday, April 29 @ 7 pm
Information Session
Prince George Civic Centre
808 Civic Plaza
Room: 201
Prince George, BC

Wednesday, May 8 @ 6 am to 8:37 am Atlantic Time
Radio Interview: Information Morning Moncton with Jonna Brewer & Vanessa Blanch
CBC Radio One
Listen live at  http://www.cbc.ca/informationmorningmoncton

Wednesday, May 8 @ 4:30 pm Atlantic Time
Radio Interview: Libre Échange avec Janique LeBlanc
Radio-Canada
Listen live at www.radio-canada.ca/emissions/Libre_echange/2012-2013

Wednesday, May 8 @ 7 pm Atlantic Time
Hemochromatosis Information Session
Future Inns Moncton Hotel and Conference Centre
40 Lady Ada Blvd
Room: Fundy
Moncton , New Brunswick

Thursday, May 9 @ 4 pm Atlantic Time
Radio Interview: CBC Mainstreet PEI with Karen Mair
CBC Radio One
Listen live at www.cbc.ca/mainstreetpei

Thursday, May 9
Television News Story on Prince Edward Island, highlighting the symbiotic relationship between Canadian Blood Services and hemochromatosis sufferers
CBC News: Compass
Story may run anytime between 5 pm and 7 pm Atlantic Time

Saturday, May 11 @ 11 am Atlantic Time
Hemochromatosis Information Session
Best Western Hotel Charlottetown
238 Grafton Street
Room: Stanhope A
Charlottetown, Prince Edward Island
Continental breakfast served

Monday, May 13th @ 6 am to 8:37 am Atlantic Time
Radio Interview: Information Morning Cape Breton with Steve Sutherland
CBC Radio One & CBC Radio Two
Listen live at www.cbc.ca/informationmorningcb

Tuesday, May 14 @ 7 pm Atlantic Time
Hemochromatosis Information Session
Grand Lake Fire Hall
850 Grand Lake Road (beside the Mayflower Mall)
Sydney, Nova Scotia

Wednesday, May 15 @ 7 pm Atlantic Time
Hemochromatosis Information Session
Sydney Mines Old Post Office Building
2 Fraser Avenue (corner of Main Street & Fraser Avenue)
Sydney Mines, Nova Scotia

Friday, May 17 between 8:30 am and 9 am Atlantic Time
Radio Interview: Maritime Morning with Jordi Morgan
News 95.7 in Halifax
Listen Live at www.news957.com/shows/maritime-morning

Tuesday, May 21 @ 12 pm to 1 pm Atlantic Time
Radio Interview: Maritime Noon with Norma Lee MacLeod
CBC Radio One
Listen live at www.cbc.ca/maritimenoon

Tuesday, May 21 @ 6 pm Atlantic Time
Cape Breton Regional Municipality Council Meeting Presentation
320 Esplanade, Sydney, NS

Wednesday May 22 @ 7 pm Atlantic Time
Hemochromatosis Information Session
Hilton Garden Inn Halifax Airport
200 Pratt & Whitney Drive,
Room: Cape Breton
Enfield, Nova Scotia

Saturday, May 25 Pacific Time
Diversity Health Fair Information Booth
Terrace Arena Banquet Room
Terrace, BC
11 am – 4 pm  Free Admission


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