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If you have an idea for raising awareness about hemochromatosis, or you would like to help out during Awareness Month, please contact us.
Additional volunteer opportunities can be found on this site's Volunteer page.
Hereditary hemochromatosis is caused by defects in a gene called HFE. DNA testing can confirm the presence of the three mutations which are known to cause hemochromatosis: C282Y, H63D and S65C. DNA testing can be done to find out if your family may be at risk.
A confidential HFE genetic testing using buccal (mouth) swab collection is available through Genetrack Biolabs at www.hemochromatosisdna.com.
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Hemochromatosis Awareness Month is held the month of May of each year.
During Awareness Month, the Society print packages and electronic information for distribution to a country-wide network of regional contacts / volunteers.
Awareness Month volunteers concentrate their efforts during this month by setting up information booths in malls, hospitals, pharmacies and blood donor clinics.
We also schedule interviews with local radio, television and newspapers to drive people to the CHS web site or to contact the CHS office, where they can access hemochromatosis information packages.
Below is a list of events surrounding Hemochromatosis Awareness Month. Please contact us if you have an idea for raising awareness about hemochromatosis, or you would like to volunteer during Awareness Month.
Volunteers will send out Letters to the Editor in their local papers to promote hemochromatosis awareness. If you would like a template of a letter to send to your local newspaper, please email Brenda at bohara@toomuchiron.ca.
CHS is at the Canadian Home Builders Association of Northern BC (CHBA NBC) Home Show April 27, 28 and 29 at the Prince George Exhibition Grounds. Come visit us in Booth 357 to gather more information on hereditary hemochromatosis and meet Executive Director Bob Rogers. We thank CHBA NBC for their kind support and invitation to participate in this year's home show.
April 28: Benefit Concert For The Canadian Hemochromatosis SocietyJoin Il Sono Men's Vocal Ensemble - Calgary's premiere men's ensemble - for their spring concert. "His Sound" celebrates the versatility of the male voice. Il Sono will be singing "over 400 years of the manliest music" from Palestrina to Billy Joel. You don't want to miss this concert.
Saturday April 28, 2012
8:00 pm
St. Stephen's Anglican Church (1121 14th Ave. SW)
Tickets $10 at door
Awareness Month kicks off a little early this year with a Hemochromatosis Information Workshop being held in Edmonton. This workshop will feature a Power Point presentation about hemochromatosis followed by a question and answer period. This event takes place on April 25 at 7:00 pm at the Holiday Inn Express located at 2440 Calgary Trail in South Edmonton. Please RSVP your attendance as soon as possible as space is limited. To RSVP please call 1-877-BAD IRON.
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