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Regional Organizer: Anne Stang, email@example.com
Regional Organizers: Tara and Paul Jacques, firstname.lastname@example.org
Regional Organizer: Jim Owen, email@example.com
Regional Organizer: Marjorie Lounder, firstname.lastname@example.org
Co-Organizer: Elaine Robinson, (613) 521-5897
Toronto & Areas
Regional Organizer: Kay Easun, (416) 598-5248
Co-Organizer: Jean Saloranta, (416) 485-1044
Regional Organizer: Juliana Pavelka-Johnston, email@example.com
Hereditary hemochromatosis is caused by defects in a gene called HFE. DNA testing can confirm the presence of the three mutations which are known to cause hemochromatosis: C282Y, H63D and S65C. DNA testing can be done to find out if your family may be at risk.
A confidential HFE genetic testing using buccal (mouth) swab collection is available through Genetrack Biolabs at www.hemochromatosisdna.com.
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The Canadian Hemochromatosis Society is always looking for individuals who are willing to help increase hemochromatosis awareness.
From sea to sea, individuals have volunteered to be the point person(s) in their region recruiting others to help spread awareness of hemochromatosis where opportunities exist, and providing leadership within their community. Chapters are now being formed across the country, and we are seeking new volunteers to fill roles of Regional Organizers, who will lead their local Chapter, and Local Volunteers, who will be part of a team that supports the activities of their local Chapter.
Presently there are established Chapters in cities across Canada that plan and run awareness-raising activities. Please see the column on the right for our list of current Chapters and Regional Organizers.
If you are interested in becoming the Regional Organizer for a new Chapter, or if you would like to plan awareness events in your area where there are currently no Chapters, we want to speak with you! Please contact our Volunteer Coordinator at firstname.lastname@example.org.
If you would like to become a volunteer for an existing Chapter, please contact the Regional Organizer directly. Their contact information can be found in the column to the right.
There are many ways you can volunteer in your community to help get the word out about hemochromatosis during Awareness Month, and year round:
For more information on any of the volunteer opportunities above, please contact us.