CHS Newsletter

Iron Filings – Newsletter of the Canadian Hemochromatosis Society

The CHS newsletter, issued twice each year, is full of information about current HHC research, first-person stories from hemochromatosis sufferers, dietary information, news about the disorder and about members and the society itself.

Past copies of the newsletter are also available in PDF format on this website.

Past Issues

Newsletters linked below are in Adobe PDF format.

Fall 2013 Iron Filings Newsletter

  • Partners in Prevention
  • Personal Story: Stop Light Wake-Up Call
  • Questions Answers
  • Personal Story: A Better Understanding
  • Mailbag
  • Thank you to our newest corporate partners
  • Dugood in Your Hood
  • Among Ourselves
  • How Do Prince Edward Islanders Manage Their Hemochromatosis?
  • Upcoming Events
  • DNA 101: Prevention Through Genetic Testing
  • CHS Updates

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Automne 2013 Iron Filings

  • Partenaires dans la prevention
  • Ce n’etait pas seulement une question de l’age
  • Questions Reponses
  • Une meilleure comprehension de l’hemochromatose
  • Boite aux lettres
  • Merci a nos nouveaux partenaires commerciaux
  • Entre nous
  • Comment les Prince- Edouardiens gerent l’Hemochromatose?
  • Evenements a venir
  • ADN 101: La prevention par depistage genetique
  • Mise a jour

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Special Edition 2013 Iron Filings Newsletter

  • Getting the Job Done
  • Awareness in Atlantic Canada Reaches New Heights
  • My Call to Action
  • Among Ourselves
  • DUgood in Your Neighbourhood
  • Irons Sparkled in the Sun
  • Attention: All Family Physicians in the Maritimes
  • Montreal Awareness and Information Event October 24th, 2013

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Édition spécial de 2013 Iron Filings

  • Fer le travail!
  • La sensibilisation dans le Canada Atlantique atteint de nouveaux sommets
  • Mon appel a la mobilisation
  • Entre nous
  • DUgood dans votre region
  • Les fers scintillaient au soleil
  • Attention: Tous les medecins de famille dans la region des maritimes
  • Une seance d’information a Montreal, Quebec le 24 octobre 2013

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Spring 2013 – English

  • ”Tis Healthy to be Sick Sometimes’
  • May Awareness Month Calendar
  • Let me Carry Your Voice Into Talks With Governments & Colleges
  • DUCA Supports Hemochromatosis Community
  • Focus on the Patient: Q and A with Dr. Paul Adams
  • Among Ourselves
  • Special Acknowledgements
  • DNA 101: Research Into Past, Present and Future
  • CHEO Genetics Clinic: A Look at Genetic Services Related to Hemochromatosis
  • Irons for Iron Golf Events
  • We Did It Again! Canadian Blood Services

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Spring 2013 – French

  • ‘Il est sain d’etre malade parfois’
  • Calendrier des evenements du Mois National de la sensibilisation
  • Laissez-moi porter votre message lors des entretiens avec les Gouvernements et les Colleges
  • DUCA appuie l’Hemochromatose
  • Pleins feux sur le patient: Questions et reponses avec le Dr. Paul Adams
  • Entre nous
  • Remerciements particuliers
  • AND 101: Recherche passes, presentes et futures
  • Clinique de genetique du CHEO: Un regard sur les services de genetique lies a l’hemochromatose
  • Les tournois de golf ‘Des fers pour le fer’
  • Encore une fois, nous avons atteints notre but tout cela n’aurait pu etre possible sans votre soutien Societe canadienne du sang

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Fall 2012 – English

  • Ironians Live Amongst You
  • Looking Back for Answers – French Canadian History and Hemochromatosis
  • Why are Accidental Findings Transcending Sound Medical Practice?
  • Chondrocalcinsosis: A Valuable Indicator
  • Partner in Focus: Hema-Quebec
  • Among Ourselves – Stories about our dedicated volunteers
  • DNA 101: The Genetics of Hemochromatosis
  • What are the Chances…?
  • Synchronistic Life Events Bring Blessings
  • CHS Updates
  • New Blood Donors Needed

Download PDF

Fall 2012 – French

  • Des Ferriens Parmi Vous
  • Retour sur le passe pour obtenir des reponses – l’histoire canadienne francaise et l’hemochromatose
  • Pourquoi les decouvertes fortuites transcendent la pratique medicale rationnelle?
  • La chondrocalcinose articulaire – Un indicateur interessant
  • Pleins Feux sur un Partenaire: Hema-Quebec
  • Entre nous
  • ADN 101: La genetique de l’hemochromatose
  • Quelles sont les probabilites…?
  • Un diagnostic, 2 benedictions
  • Mises a jour de la SCH
  • Besoin de nouveaux donneurs de sang

Download PDF

Spring 2012 – English

  • Firefighter’s Iron Levels Reach Flash Point
  • CHS Serves and Supports
  • Insurance Issues
  • Canadian Blood Services: We Surpassed Our Goal!
  • Updates
  • May Awareness Month
  • DNA 101: DNA Testing for Hemochromatosis
  • 2011 Annual General Meeting Official Notice
  • Heading to the United States?
  • Special Acknowledgements

Download PDF

Spring 2012- French

  • Les niveaux de fer d’un pompier atteignent un seuil critique
  • La SCH sert et soutient
  • Questions d’assurance
  • Societe canadienne du sang: Nous avons depasse notre objectif
  • Actualites
  • Mai, le mois de la sensibilisation
  • ADN 101 : l’analyse genetique de l’hemochromatose
  • 2011 L’Assemblee Generale Annuelle
  • En route pour les Etats-Unis?
  • Remerciements particuliers

Download PDF

Fall 2011 – English

  • Alberta MLA Fights Hemochromatosis
  • Alberta Supports Hemochromatosis Cause
  • Hemochromatosis and Your Diet
  • Spotlight on Volunteers
  • Update from the BioIron Conference
  • Marie Warder Awarded for Lifetime Achievement
  • The Ins and Outs of the Phlebotomy Bag
  • Alberta Top Blood Collection Region in Western Canada
  • Casino Support Rocks CHS
  • CHS Updates

Download PDF

Fall 2011 – French

  • Un depute albertain lutte contre l’hemochromatose
  • L’Alberta donne son soutien a la sensibilisation a l’hemochromatose
  • L’hemochromatose et votre diete
  • Pleins feux sur les benevoles
  • Mise a jour du Congres de la Societe BioIron
  • Marie Warder honoree pour l’ensemble de son oeuvre
  • Les tenants et aboutissants des poches de phlebotomie therapeutique
  • Les Albertains au premier rang des donneurs de sang dans l’Ouest canadien
  • Mises a jour

Download PDF

Spring 2011 – English

  • Families Matter A Family in Newfoundland & Labrador Is Grateful For Diagnosis
  • President’s Message Choices that Matter
  • Hemochromatosis Counselling at CHEO
  • BioIron Conference Update
  • Hormone’s Crucial Role in 2 Anemic Blood Disorders
  • Society Updates
  • Blood Donation 101: Why You Should Donate Your Blood, Plus Tips for a Successful
  • Blood Donor Appointment
  • The Celtic Curse, The Canadian Cause, The Cure
  • AGM Official Notice
  • Thank You for your Donations

Download PDF

Spring 2011 – French

  • En matiere familial Une famille de Terre-Neuve-et-Labrador est reconnaissante pour le diagnostic
  • Message Du President Les Choix
  • Le counselling concernant l’hemochromatose au CHEO
  • Le congres BioIron
  • Le role integral d’une hormone dans deux maladies sanguine
  • Le Don de sang 101: Pourquoi donner et ce qu’il faut savoir pour un rendez-vous reussi
  • La malediction celtique, la cause canadienne, la guerison
  • Avis official: Assemblee generale annuelle 2010
  • Merci pour vos dons

Download PDF

Fall 2010 – English

  • Raising Awareness is Plagued With Frustration
  • Hello? Help Us Be Heard
  • New Approach to Screening & Early Diagnosis
  • Genetic Testing, Iron Levels and Risk
  • International BioIron Society Conference To Be Held in Vancouver May 2011
  • Aeroplan Campaign a Success

Download PDF

Fall 2010 – French

  • La sensibilisation est en proie a la frustration
  • Nouvelle approche pour le depistage et le diagnostic precoces
  • Le depistage genetique, les niveaux de fer, et les risques
  • Le congres de l’International BioIron Society (IBIS) aura lieu en mai 2011 a Vancouver
  • Operation Aeroplan: une grande reusssite!

Download PDF

Spring 2010 – English

  • Out of the Blue by Patrick Haney
  • Canadians Need a Guideline for Diagnosing Hemochromatosis in Every Province
  • Message from the Outgoing President, Ross Gilley
  • Message from New President, Frank Erschen
  • Gold Medal Given to Hemochromatosis Expert

Download PDF

Spring 2010 – French

  • Tombé du ciel par Patrick Haney
  • Chaque province canadienne doit avoir un protocol de diagnostic pour l’hémochromatose
  • Ross Gilley, Président sortant de la SCH
  • Le nouveau président: Frank Erschen
  • Expert d’hémochromatose honoré

Download PDF

Fall 2009 – English

  • How Hemochromatosis Affected William Brinnen’s Life
  • Why French Canadians Are At Risk For Hemochromatosis
  • Are You Iron Avid?
  • What Everyone Should Know About Ferritin

Download PDF

Fall 2009 – French

  • Témoignage de Diane Jodouin
  • Haute prévalence de l’hémochromatose parmi les Canadiens français
  • Avez-vous l’avidité ferrique?
  • Ce que vous devriez savoir sur la ferritine

Download PDF

Spring 2009

  • The Curse and the “Cure”, The Celtic Connection
  • Phlebotomy Tips
  • May Awareness Month Events
  • Host a Party Ideas
  • AGM Official Notice
  • CHS Updates and News

Download PDF

Fall 2008

  • Awareness is the Cure
  • Awareness Activities
  • Among Ourselves Again

Download PDF

Spring 2008

  • Newfoundland Coordinator Spreads the Word
  • Hemochromatosis and Your Heart
  • Members’ Corner

Download PDF

Fall 2007

  • Regional Coordinator Charms the Media
  • Meet Bob Rogers
  • Treating Hemochromatosis
  • Member’s Corner

Download PDF

Spring 2007

  • CHS Celebrates 25 Years of Awareness
  • Forum Moderator Shares Expertise
  • Protocols in Diagnosing and Treating Hemochromatosis
  • Member’s Corner
  • Hemochromatosis Awareness Month May, 2007

Download PDF

Fall 2006

  • Calgary HH Advocate Takes Her News to the Games
  • Up Close and Personal with Your Liver
  • Planned Giving

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Spring 2006

  • HHC in the Maritimes
  • Hemochromatosis Online
  • Fundraising for the Future

Download PDF

Fall 2005

  • Treatment protocol for hemochromatosis (or, why phlebotomies work)
  • Notes from International BioIron Society Conference May 2005

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Spring 2005

  • A hemochromatosis primer, with information on carriers and compound heterozygotes, different types of HHC, and normal iron absorption and storage

Download PDF

Fall 2004

  • Diet and hemochromatosis
  • Featuring our newsboard – sample questions and answers
  • The stories of two men struck down in their prime by undiagnosed hemochromatosis

Download PDF

Spring 2004

  • Digest of current hemochromatosis research
  • Mail bag – possible link between ankle pain and HHC

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Fall 2003

  • Report from BioIron conference 2003
  • Treating symptoms and missing the disease
  • An appreciation of Eugene Boyko

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Spring 2003

  • A gene pool for HHC research (article by Dr. Chris Whittingdon)
  • Article on iron-related heart arrythmias

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Autumn 2002

  • Endocrine damage and HHC, and the role of liver in nutrition
  • The CHS and CBS team up to promote blood donations by healthy HHC patients on maintenance therapy

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Spring 2002

  • Report from Iron Disorders Patient conference 2001
  • Diabetes and HHC, and the dangers of inhaled iron

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Fall 2001

  • Report from BioIron 2001 Australia
  • Parkinson’s and Iron, and why transferring saturation % is naturally higher in newborns

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March 2001

  • Alzheimer’s and iron
  • Clinical management of HHC flow chart

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