HHC Organizations

Canadian Contacts (Provincial & National)

The CHS has regional contacts in most Canadian provinces. Please contact our office for information on getting in touch with these individuals.

International Hemochromatosis Organizations

Australia

Haemochromatosis Society of Australia
President – Ben Marris
PO Box 154
Coopers Plains, 4108
Tel: 1300 019 028
Email: information@haemochromatosis.org.au

Belgium

Haemochromatose Vereniging Vlaanderen vzw
Maatschappelijke zetel: UZ Leuven campus Gasthuisberg
Herestraat 49
3000 Leuven

Tel. 016 34 46 26
E-mail: info.hvv@gmail.com
www.haemochromatose.be

Brazil

Dr. Marco A. Lacerda
R. Dona Branca do N. Miranda
Curitiba 517
Tel: 011.554.199.40887

Canada

Canadian Hemochromatosis Society
Suite 285 – 7000 Minoru Blvd
Richmond, BC Canada V6Y 3Z5

Toll-Free (Canada): 1-877-BAD-IRON (1-877-223-4766)
Tel: (604) 279-7135
Email: office@toomuchiron.ca
Web: www.toomuchiron.ca

England

The Haemochromatosis Society
Janet Fernau
Hollybush House
Hadley Green Road
Barnet Herts EN5 5PR
Tel: 0181.449.1363

Finland

The Wasa Workgroup on Intestinal Disorders
c/o Hans Björknäs, GASTROLAB, Kirkkopuistikko 18 B 37, 65100
Vaasa, Suomi
Puh/Fax: 06-3124055
Email: info@gastrolab.tk
Web: http://www.gastrolab.net/ksqhekrf.htmhttp://www.gastrolab.net/kslinks.htm

France

Association Hémochromatose France
Pierre-Marie Morel
Jean Guérin
Délégué Régional
B.P. 7777
Nimes Cedex
30912
Tel: 04.66.64.52.22
Tel: 04.66.62.93.87
Email: hemochromatose@wanadoo.fr
Email: hemoch@wanadoo.fr

Fédération Française des Associations de Malades de l’Hémochromatose (French Federation of Associations of Patients with Haemochromatosis)
Michel Boudry
Web: www.ffamh.hemochromatose.org/spip
Email: mboudry@club-internet.fr

Germany

Hämochromatose-Vereinigung Deutschland e.V. 
Dr. med. Barbara Butzeck
Renate Fritsch
Linder Weg 88 A, 51147 Köln
Web: www.haemochromatose.org
Email: info@haemochromatose.org
Tel: HVDeVorg = 049/ 0700 48338674

Iceland

Icelandic Hemachromatosis Society
Hreggviður Jónsson
Starengi 26
112 Reykjavík, Iceland
Tel:  +354 893 6888
Fax: *354 562 6880

Ireland

Irish Haemochromatosis Association
Jim Fenton
Carmichael House
986 Glenbigh Road
Dublin 7
Tel: 01.838.8773

Israel

David Goldenblatt
55PO Box 303
Haifa
31002

Italy

Associazione Nazionale Volontaria Per
Lo Studio Della Emocromatosi
Dr. Sylvia Fargion
University of Milano
Instituto Medicina Interna E,
Fisiopatol Medic
pad Granelli-Via F.Sforza, 35
Milano
23388200
2.55033752

The Netherlands

Hemochromatose Vereniging Nederland
Postbus 252
2260 AG Leidschendam
Web: www.hemochromatose.nl
Email: info@hemochromatose.nl

Norway

Mr. Bjorn Schage
Melkeveien 5A
Oslo
N-0779
Tel: 4790023130

Associazione Volontaria Emocromatosi
E Malattie Sovraccarico Di Ferro
Dr. Beretta Silvano
Via Donizetti, 106
Medic. 1 S. Gerardo Monza
20052
Tel: 039.2333220

New Zealand

New Zealand IronZ
Tony Aislabie
New Zealand Haemochromatosis Support & Awareness Group
PO Box 23-072
Papatoetoe
Web: www.ironz.org.nz
Email: info@ironz.org.nz

Republic of South Africa

Haemochromatosis Society of South Africa 
c/o Roger Keyte or Kirsten Alberts
PO Box 992
Northlands
2116 Johannesburg
Tel: 011.8072301
Web: www.haemochromatosisza.org
Email: info@haemochromatosisza.org

Spain

Asociación Española de Hemocromatosis
Hospital de l’Esperit Sant
Santa Coloma de Gramenet
Barcelona
Tel: 933860202 Ext 4326
Web: www.hemocromatosis.es

Sweden

The Wasa Workgroup on Intestinal Disorders
c/o Hans Björknäs, GASTROLAB, Kirkkopuistikko 18 B 37, 65100
Vaasa, Suomi
Puh/FAX 06-3124055
Email: info@gastrolab.tk

Ukraine

Inna Lubyanova
Institute of Occupational Health,
Academy of Medical Sciences of Ukraine
75, Saksagansky str.
Kiev
252033
380 44/220 6252

National Academy of Sciences of the Ukraine
Olga M. Mykhaylyk
PO Box 355
Kiev
252001
38044 252 57 71

USA

American Hemochromatosis Society (AHS)
Sandra Thomas
#104-4044 Lake Mary Blvd.
PBM 416
Lake Mary, Florida
32746
33483-5352
Tel: 407.829.4488

The Hemochromatosis Foundation Inc.
Tom Gallagher
PO Box 8569
Albany, New York
12208-569
Tel: 518.489.0972

Hemochromatosis Information Society
3017 Princeton Dr.
Plano, TX 75075
Tel: 214.893.6960
Email: info@hemoinfo.org

Iron Overload Diseases Association
Roberta Crawford
433 Westwind Drive
North Palm Beach, Florida
33408-5123
Tel: 561.840.8512

Iron Disorders Institute
PO Box 2031
Greenville SC
29602
Tel: 864.292.1175