HHC Organizations
International Hemochromatosis Organizations
Australia
Haemochromatosis Society of Australia
President – Ben Marris
PO Box 154
Coopers Plains, 4108
Tel: 1300 019 028
Email: information@haemochromatosis.org.au
Belgium
Haemochromatose Vereniging Vlaanderen vzw
Maatschappelijke zetel: UZ Leuven campus Gasthuisberg
Herestraat 49
3000 Leuven
Tel. 016 34 46 26
E-mail: info.hvv@gmail.com
www.haemochromatose.be
Brazil
Email: contato@hemocromatosehereditaria.com.br
Web: www.hemocromatosehereditaria.com.br
Facebook: www.facebook.com/hemocromatose.hereditaria
Canada
Canadian Hemochromatosis Society
Suite 285 – 7000 Minoru Blvd
Richmond, BC Canada V6Y 3Z5
Toll-Free (Canada): 1-877-BAD-IRON (1-877-223-4766)
Tel: (604) 279-7135
Email: office@toomuchiron.ca
Web: www.toomuchiron.ca
Finland
The Wasa Workgroup on Intestinal Disorders
c/o Hans Björknäs, GASTROLAB, Kirkkopuistikko 18 B 37, 65100
Vaasa, Suomi
Puh/Fax: 06-3124055
Email: info@gastrolab.tk
Web: http://www.gastrolab.net/ksqhekrf.htm, http://www.gastrolab.net/kslinks.htm
France
Association Hémochromatose France
Web: www.hemochromatose.fr
Email: hemochromatose@orange.fr
Fédération Française des Associations de Malades de l’Hémochromatose (French Federation of Associations of Patients with Haemochromatosis)
Web: www.hemochromatose.org
Email: contact@hemochromatose.org
Germany
Hämochromatose-Vereinigung Deutschland e.V.
Dr. med. Barbara Butzeck
Renate Fritsch
Linder Weg 88 A, 51147 Köln
Web: www.haemochromatose.org
Email: info@haemochromatose.org
Tel: HVDeVorg = 049/ 0700 48338674
Iceland
Icelandic Hemachromatosis Society
Hreggviður Jónsson
Starengi 26
112 Reykjavík, Iceland
Tel: +354 893 6888
Fax: *354 562 6880
Ireland
Irish Haemochromatosis Association
Web: www.haemochromatosis-ir.com
Email: info@haemochromatosis-ir.com
Israel
David Goldenblatt
55PO Box 303
Haifa
31002
Italy
Associazione Nazionale Volontaria Per
Lo Studio Della Emocromatosi
Dr. Sylvia Fargion
University of Milano
Instituto Medicina Interna E,
Fisiopatol Medic
pad Granelli-Via F.Sforza, 35
Milano
23388200
2.55033752
The Netherlands
Hemochromatose Vereniging Nederland
Postbus 252
2260 AG Leidschendam
Web: www.hemochromatose.nl
Email: info@hemochromatose.nl
Norway
Mr. Bjorn Schage
Melkeveien 5A
Oslo
N-0779
Tel: 4790023130
Associazione Volontaria Emocromatosi
E Malattie Sovraccarico Di Ferro
Dr. Beretta Silvano
Via Donizetti, 106
Medic. 1 S. Gerardo Monza
20052
Tel: 039.2333220
New Zealand
New Zealand IronZ
Tony Aislabie
New Zealand Haemochromatosis Support & Awareness Group
PO Box 23-072
Papatoetoe
Web: www.ironz.org.nz
Email: info@ironz.org.nz
Republic of South Africa
Haemochromatosis Society of South Africa
c/o Margie Viljoen
Mobile: 0828 016571
Web: www.haemochromatosisza.org
Email: maggs@tiscali.co.za
Spain
Asociación Española de Hemocromatosis
Hospital de l’Esperit Sant
Santa Coloma de Gramenet
Barcelona
Tel: 933860202 Ext 4326
Web: www.hemocromatosis.es
Sweden
The Wasa Workgroup on Intestinal Disorders
c/o Hans Björknäs, GASTROLAB, Kirkkopuistikko 18 B 37, 65100
Vaasa, Suomi
Puh/FAX 06-3124055
Email: info@gastrolab.tk
Ukraine
Inna Lubyanova
Institute of Occupational Health,
Academy of Medical Sciences of Ukraine
75, Saksagansky str.
Kiev
252033
380 44/220 6252
National Academy of Sciences of the Ukraine
Olga M. Mykhaylyk
PO Box 355
Kiev
252001
38044 252 57 71
United Kingdom
Haemochromatosis UK
PO Box 6356
Rugby
CV21 9PA
T: 03030 401101 (office)
T: 03030 401102 (advice line)
W: www.haemochromatosis.org.uk
USA
American Hemochromatosis Society (AHS)
Sandra Thomas
#104-4044 Lake Mary Blvd.
PBM 416
Lake Mary, Florida
32746
33483-5352
Tel: 407.829.4488
The Hemochromatosis Foundation Inc.
Tom Gallagher
PO Box 8569
Albany, New York
12208-569
Tel: 518.489.0972
Hemochromatosis Information Society
3017 Princeton Dr.
Plano, TX 75075
Tel: 214.893.6960
Email: info@hemoinfo.org
Iron Overload Diseases Association
Roberta Crawford
433 Westwind Drive
North Palm Beach, Florida
33408-5123
Tel: 561.840.8512
Iron Disorders Institute
PO Box 2031
Greenville SC
29602
Tel: 864.292.1175