Videos: Hereditary Hemochromatosis
Some of the following videos are available as podcasts. Download the podcasts here and listen from wherever you are.
2021 Canadian Blood Services Information Session with Stephanie Pedersen
Canadian Blood Services is the organization that manages Canada’s supply of blood products for all provinces and territories, excluding Quebec.
In March, the Canadian Hemochromatosis Society hosted Stephanie Pedersen, Territory Manager for Canadian Blood Services. In this presentation, Stephanie provides the audience with an overview of the work of Canadian Blood Services, an update on COVID-19 safety protocols for blood donors, donor eligibility criteria, and a demonstration on how to join a Canadian Hemochromatosis Group Blood Donation event using their new online booking system.
2020 Membership Lecture Series Guest Lecturer: Dr. Paul Adams
The Canadian Hemochromatosis Society proudly hosted Dr. Paul Adams on July 14, 2020 in the second lecture in its Membership Lecture Series. Dr. Adams addressed the common conundrum, “Why am I never on the same page as my doctor about hemochromatosis?”
Dr. Paul Adams, MD, FRCP(C)-Professor of Medicine, Western University, London, Ontario, has a special research interest in the study of genetic hemochromatosis. He has previously been the Editor-in-Chief of the Canadian Journal of Gastroenterology (2005-2010) and the Chief of the Division of Gastroenterology at Western (2007-2017). He has been funded continuously by the National Institute of Health (Bethesda, MD) for the past 19 years. He currently has 344 publications including papers in the New England Journal of Medicine, Nature Genetics, Gastroenterology, Hepatology, Annals of Internal Medicine, and Lancet. He has received the Commemorative Medal for the Golden Jubilee of Her Majesty Queen Elizabeth II. In 2010 he received the Gold Medal from the Canadian Association for the Study of the Liver and the Canadian Liver Foundation. In October 2013 he was awarded an Honorary Fellowship with Distinction from the Royal College of Physicians of Ireland for lifetime research contributions to the field of hemochromatosis. He has an honorary Fellowship from the American Association for the Study of the Liver (AASLD 2014). In 2019, he received the Marcel Simon Award presented in Heidelberg,Germany (May 2019) for lifetime research achievement in hemochromatosis, and the Canadian Liver Foundation 50th Anniversary Gold Medal. He is the CASL Visiting Professor for 2019.
Thank you Dr. Adams and Canadian Hemochromatosis Society members and supporters for making this presentation possible.
Part 1. Serum ferritin levels and symptoms
In Part 1, Dr. Adams discusses why a doctor may not be checking a patient’s serum ferritin levels and why symptoms may not lead them to immediately check for hemochromatosis.
Part 2. Your doctor’s knowledge on the diagnosis and treatment of hemochromatosis
In Part 2, Dr. Adams delves into the topic of hemochromatosis expertise and your doctor.
Part 3. Question and Answer Period
In Part 3, Dr. Adams answers questions from the audience.
2020 Membership Lecture Series Guest Lecturer: Prof. Pierre Brissot
On June 17, 2020, the Canadian Hemochromatosis Society presented its first online information session in its Membership Lecture Series. We were honoured to have Prof. Pierre Brissot join us live from Rennes, France, to provide us with an updated view on the definition, diagnosis and treatment for hemochromatosis in 2020.
Pierre Brissot is a Professor Emeritus of Medicine ; Member of the French National Academy of Medicine ; Past-President of the International BioIron Society ; Founder or Co-founder of FFAMH (Fédération Française des Associations de Malades de l’Hémochromatose), EFAPH (European Federation of Associations of Patients with Haemochromatosis), and HI (Haemochromatosis International).
Thank you to Prof. Brissot, and Canadian Hemochromatosis Society members and supporters for making this presentation possible.
2016 Guest Lecturer: Dr. Paul Adams
In October 2016, the Canadian Hemochromatosis Society held an Information Session in Guelph, Ontario, featuring Dr. Paul Adams, Professor of Medicine and Chief of Gastroenterology, University of Western Ontario. The Canadian Hemochromatosis Society recorded this session and presents it here in a series of 8 videos that cover a wide range of topics from ancestral links to research, diagnosis, treatment, ferritin and diet.
Special acknowledgements and thanks to Dr. Paul Adams and to James Brodie Productions for producing these videos.
1. Ancestral Links
In this video segment, Dr. Adams speaks on the possible origins of the hemochromatosis gene, its migration and its modern day prevalence.
In this proviso to the upcoming video segments, Dr. Adams discusses the degree of uncertainty related to science and medicine, and the various approaches to diagnose and treat hemochromatosis.
Dr. Paul Adams goes into the discovery of the C282Y gene, symptoms of hemochromatosis, the reasons there is no mass population screening, and lessons learned from the HEIRS (Hemochromatosis and Iron-Overload Screening) study.
Dr. Adams presents the familial risks of hemochromatosis and the potential stigmatization that arises from genetically testing children.
Dr. Adams discusses how diagnoses are generally made…. and why some are missed. Also: what do most people have when their ferritin levels are found to be between 300 and 1000 ng/mL? Hemochromatosis surprisingly does NOT top the list.
6. Ferritin Tests
Here, Dr. Adams answers audience questions on ferritin, iron overload and liver biopsies.
Scarring of the liver caused by iron overload can be reversed by treatment with phlebotomies, but Dr. Adams explains why many do not see improvement of joint pain. Also, Dr. Adams discusses situations where some individuals do not require maintenance once de-ironed.
Dr. Adams discusses hepcidin’s role in regulating body’s iron balance and the effects of diet in hemochromatosis.